Hi there everyone,
Still not a lot to report we are still waiting for word on Alberta Rehab.
Will post when we know.
This last week has been a little rough as breathing difficulties come and go guess this a normal thing as long as you are in a hospital. Not normal is having doctors not return phone calls or answer direct questions reguarding problems.
Its a bit of an irony as Chris is the all inclusive doctor never leaving any questions unanswered or explaining everything 10 times if that what it took.
We are feeling cheated by a system that he wanted so badly to be a part of and help out with, it now becomes the very system that is walking away from him, something he did not believe would happen here in Canada.
Now is probably the time to start making waves and pushing the politicians for answers and find out where they stand on all of these issues before we vote???????
Anyway chamber visits stopped breifly because he may or may not have Pneumonia. They only did three sepate X-rays and blood work as well as two doctors examine him. The results one thinks he does have it the other thinks not talk about a waste of time and money.
Will keep updating his in and out times as to give heads up whether or not he is at the hospital or not.
Thanks for checking up on him.
Sorry to Kirsty who went and did a session with Chris in the chamber I was going to put a picture of them up here but the SD card screwed up and I lost the pictures. We will have to get another.
Wednesday, September 24, 2008
Monday, September 15, 2008
Monday September 15, 2008
Hey all,
Non exciting week havent talked to Shelley about yesterday but all is progressing.
Chris got the Botox injections this past week so in about 10 days we will be seeing effects of this. Hopefully all the splinting will have great effects once the resistance is removed.
Taking off to meet with the wheel chair people as his new chair will arrive this morning. Once all is done I will update a little further this afternoon. Thank you Kirsty for attending and going into the chamber on Saturday so I could free up more work time (pictures will be posted shortly).
Kevin
Non exciting week havent talked to Shelley about yesterday but all is progressing.
Chris got the Botox injections this past week so in about 10 days we will be seeing effects of this. Hopefully all the splinting will have great effects once the resistance is removed.
Taking off to meet with the wheel chair people as his new chair will arrive this morning. Once all is done I will update a little further this afternoon. Thank you Kirsty for attending and going into the chamber on Saturday so I could free up more work time (pictures will be posted shortly).
Kevin
Sunday, September 7, 2008
Good afternoon,
Yes it has been a week between posts, not allot has been happening this last week much like last.
Chamber appointments have slowed, as I needed to finish some pressing work prior to arranging his acceptance and travel to the Halvar Johnson Center in Alberta.
(We do not yet have a definitive date set yet, but will fill it in here as soon as we know.)
Christopher did go to the hyperbaric chamber this week but sessions were stopped after his feed tube was dislodged from its placement while exiting the chamber and had to have it replaced the next day.
This has caused a slight set back in the treatment process hopefully not to long.
Sorry to those of you who came up to visit Chris and he wasn’t here as we were not aware he would not be there on Wednesday, we try to keep an up to date schedule, at least as close as possible sometimes things become very busy and it doesn’t get posted in time. If you need to check and can’t get on to the blog you can phone or text message any of us and check what’s up for the day.
We are giving him a few days to let it heal and set in so he will be at the hospital Sunday, Monday and Tuesday. Wednesday Shelley and I will be taking him to GF Strong to have his legs and wrist reassess and muscle relaxants injected to prevent cramping. So he will be back at the hospital about 230 –300 pm on Wednesday. Thursday and Friday we have not set hyperbaric appointments at this time.
Next Sunday Christine Wall will be up to do some massage on Chris if any of you are around she could probably use a hand in moving him around, she should be there sometime around 1200 leaving by at least 130PM she has to be away for a 2:00 PM appointment.
Thank you Helen for making the album available and keeping the pages clear and open for those whom would like to add to it. Remember if you have photo's of Chris you would like to share bring them in and either put them in the album or leave them in an envelope and Helen will trim them or what ever is needed and place them for you.
Kevin
Yes it has been a week between posts, not allot has been happening this last week much like last.
Chamber appointments have slowed, as I needed to finish some pressing work prior to arranging his acceptance and travel to the Halvar Johnson Center in Alberta.
(We do not yet have a definitive date set yet, but will fill it in here as soon as we know.)
Christopher did go to the hyperbaric chamber this week but sessions were stopped after his feed tube was dislodged from its placement while exiting the chamber and had to have it replaced the next day.
This has caused a slight set back in the treatment process hopefully not to long.
Sorry to those of you who came up to visit Chris and he wasn’t here as we were not aware he would not be there on Wednesday, we try to keep an up to date schedule, at least as close as possible sometimes things become very busy and it doesn’t get posted in time. If you need to check and can’t get on to the blog you can phone or text message any of us and check what’s up for the day.
We are giving him a few days to let it heal and set in so he will be at the hospital Sunday, Monday and Tuesday. Wednesday Shelley and I will be taking him to GF Strong to have his legs and wrist reassess and muscle relaxants injected to prevent cramping. So he will be back at the hospital about 230 –300 pm on Wednesday. Thursday and Friday we have not set hyperbaric appointments at this time.
Next Sunday Christine Wall will be up to do some massage on Chris if any of you are around she could probably use a hand in moving him around, she should be there sometime around 1200 leaving by at least 130PM she has to be away for a 2:00 PM appointment.
Thank you Helen for making the album available and keeping the pages clear and open for those whom would like to add to it. Remember if you have photo's of Chris you would like to share bring them in and either put them in the album or leave them in an envelope and Helen will trim them or what ever is needed and place them for you.
Kevin
Monday, September 1, 2008
Monday September 1, 2008
Good afternoon,
Yes it has been a while, not allot has been happening this last week.
Chris did have a scare on Monday night as we thought he had a Seizure but upon arriving at the hospital and seeing Chris and hearing his vital signs at the time it did not add up.
Following morning the doctor on agreed it was not a seizure but one of his uptight moments when his breath is short and flem causing tough breathing also a very tiring day as Shelley Uncle Larry and I had him out to the dentist and Shelley then toof him to a Private physio appointment. He has been a bit tired with all the running around and keeping him busy so he had four days to rest with only the hospital physio to contend with.
He was back to the hyperbaric chamber on Friday for his 15th treatment and will be attending Saturday for the 16th.
We are still waiting for Halvar Johnson medical facility in Ponoka Alberta to coordinate the admission for therapy there on a trial basis probably from 1 to 3 months, during which time we are going to have to scramble to arrange for living arrangements so Chris has a home to come home to. This will be needed as the hospital is not going to be easy to persuade they will put up a fight about where he should go. We will keep everyone informed as to the ongoing drama and pigheadedness the health system throws at us.
We all know that very little help will be coming from the system and anything we want for Chris and his life is going to have to be fought for, so we march on and on.
All of you who are capable with trades and have the time and those who just want to help keep in mind that when we find the property to build on any and all help and support in building a place for Chris would be gratefully appreciated. More info on this will follow as it becomes closer to reality.
Thank you all for caring and sharing as well as checking up on Chris and I will try to be more frequent with the updates.
Kevin.
Yes it has been a while, not allot has been happening this last week.
Chris did have a scare on Monday night as we thought he had a Seizure but upon arriving at the hospital and seeing Chris and hearing his vital signs at the time it did not add up.
Following morning the doctor on agreed it was not a seizure but one of his uptight moments when his breath is short and flem causing tough breathing also a very tiring day as Shelley Uncle Larry and I had him out to the dentist and Shelley then toof him to a Private physio appointment. He has been a bit tired with all the running around and keeping him busy so he had four days to rest with only the hospital physio to contend with.
He was back to the hyperbaric chamber on Friday for his 15th treatment and will be attending Saturday for the 16th.
We are still waiting for Halvar Johnson medical facility in Ponoka Alberta to coordinate the admission for therapy there on a trial basis probably from 1 to 3 months, during which time we are going to have to scramble to arrange for living arrangements so Chris has a home to come home to. This will be needed as the hospital is not going to be easy to persuade they will put up a fight about where he should go. We will keep everyone informed as to the ongoing drama and pigheadedness the health system throws at us.
We all know that very little help will be coming from the system and anything we want for Chris and his life is going to have to be fought for, so we march on and on.
All of you who are capable with trades and have the time and those who just want to help keep in mind that when we find the property to build on any and all help and support in building a place for Chris would be gratefully appreciated. More info on this will follow as it becomes closer to reality.
Thank you all for caring and sharing as well as checking up on Chris and I will try to be more frequent with the updates.
Kevin.
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