End of September

Hello,
Updates are slow but positive. Chris is working hard with his new physio therapist, she doesn't let up nor give up.
Last week she got Chris to kick the ball while sitting on the edge of the table.
This week has been excellent for responding to questions, given time he has been able to direct his hand to select answers to things that are close to him.
Not so good at being able to rell the enviroment around him or where he is, but able to answer questions on family and things close to him.
Splinting and all therapies have moved up a notch making for a very tired guy at the end of the day. His new hand splint will be able to be adjusted to start putting a little stronger pull on his fingers to straighten them out. Leg splints have been adjusted to allow easier access and more comfort for longer wear and they keep his feet and legs straight while standing on the tilt up frame. Water therapy continues as usual great now for relaxing as three of them are at the end of the day.

September update

Hello again,

Well let me start this week out with lots of praise for the physiotherapists working with Chris, they have him stretching early in the mornings, as well they ensure that his legs splints go on regularly through the day. He has now been getting multiple trips on the tilt table through the week lots of sit up and stretching exercises.

Wednesday morning when I arrived he was already up on the table already halfway through his session when therapists told him to let me know what happened this morning. After a minute or two they indulged me and told me that he had actually started to kick a ball with one leg while sitting on the table. Absolutely amazing how something so simple can bring a tear to your eyes, and make the hair on your neck stand up.

He was pretty tired this afternoon and ended his day with a massage. I also found out today from the distributor for the bicycle that was supposed to be here yesterday or today, he just found out there's been a two-week delay in delivery so we're trying to get one of the distributors in Edmonton to lend us one until Chris's arrives, the wait has been very frustrating, let you know once we get it.

On the home front we've looked at several more homes, it has come down to three or four possibilities, will be looking at them again this weekend and hopefully making a decision by Sunday.

I was asked to put in a reminder about the fundraiser which is October 10 at Sunbury Hall on Dunlop Road in Delta. If anyone has any questions or ideas they can contact Shelley or respond with a question through the blog site to me and I will forward it on to Shelley to look after or just e-mail back if I can answer.

Thank you,

Kevin

Mid-September update

Hello everyone, Chris is back underway with this programs at the Halvar Jonson center. It took a while but we now have all of his new programs setback in order and made sure that we had access to the pool and other therapies. His pool times have changed quite a bit through the week and require a little bit more flexibility of my arrival and departure times, his new therapies are more intense than before and shows signs of his reacting to them, he's much more tired and in need of sleep by the time late afternoon comes around.
We've got a good running start at most of the applications needed to be put in place, we do not yet have answers or acknowledgments that we were successful.
I await day by day for the answer to these questions.
His bike is being shipped from Germany and left 10 days ago and we still have another seven to go until delivery, this has us chomping at the bit to get back underway.

Sorry for the delay on the blog updates I've been very very busy and along with that very tired, seems impossible to stay awake at night to update even though I know a lot of you check daily, thank you for understanding.

Chris's workouts are pretty intense and keep him wrapped up most of the day, he doses and falls into deep sleeps in the afternoon and early evening this is a good thing.

Shelley and the kids were here last weekend to see him on Saturday and Sunday morning which I'm sure was very uplifting for him to hear Gwen, Kylan and Shelley.

Will update regularly this week, as I am now staying in Ponoka close to the center this enables me to get there earlier and stay later without running myself into the ground.

Will immediately add to the blog any good news or updates as it happens through the day and will faithfully try to updated each evening this week while here.

Thanks again for checking caring talk to you soon.

Kevin

The extended stay

Hello everyone,

Well after a week away and total chaos dealing with extending Chris's stay in Ponoka, I spent many hours on the phone trying to get funding approval. So many hoops and hurtles to jump through at one time it would appear to be near impossible. Then I got a boost and some much needed help from some wonderful doctors and after many more hours of preparation funding was approved to extent Chris's stay.

Being back this week has been a trying one as we were not sure how long the Halvar Jonson Center would be willing to give us to continue. As of Wednesday we have come to an agreement with the Centennial center in Ponoka to extent Chris to up to three months to continue therapy at the great care that he receives here.

The cycle that was showing so much promise and an integral part of Chris' workout had to be returned on September 2nd. Something went wrong with the order process and it never arrived. We've had to order another one directly form Germany and wait for 15 days for it to arrive.

We will just have to keep extra busy with other activities until that happens. As his new term starts all of the therapies have had to realign and change time so it's a little confusing these first few days as everything gets put back in place to best suit Chris. While I was home last week I was able to take care of some other outstanding issues for equipment with ICBC. So the next couple of weeks will be spent trying to find the right property that will suit our needs for Chris, as most of the properties or houses we have seen the past did not quite meet the needs of alterations that will be acquired. So we will start in earnest to locate a suitable property immediately.

It would seem the roller coaster never stops, just figured as time went on the hills would get a little smaller but we seem to be riding a big one. Will update again after today's therapy and hopefully put on a picture or two and maybe a video.

Thank you all for checking in, talk to you soon.
Kevin