I will start by saying, saying sorry for the delays just doesn’t cut it, so….. I am not apologizing for the delays you just have to know it is a very busy time and I will do my best to update as frequently as possible. I will add in smaller updates as they occur so they are brief and cover all that is happening.
So things have been moving forward and upwards, not as fast as I want but in the big picture, fast in comparison to all the crap that has been thrown at us. As long as we can walk around, through or over the crap and keep the peddle to the medal for what Chris needs it is good, life is good, it really is how you play the game.(of life).
New meanings for everything I have encountered and everything Chris has had to endure. I am still in an impatient frame of mind when it comes to new things happening, then I remember what my cousin quietly told me. If you plant seeds in the garden they do not grow over night, but if you nurture and tend to their needs and have a whole lot of undeniable belief in what you are doing or planting those seeds they will grow and develop, even without all your worry!
So onto the update…….. We have a standing frame that works perfect for Chris and have applied for funding for it. We have purchased a Lazy Boy chair and it has added a great break during hectic days it is big enough to allow his niece and nephew to sit in with him.. Speech has been going great, Chris has started on yogurts and mashed potato with gravy and some other soft foods and water. A cold has set in and put things on hold for a few days. Chris made it out for thanksgiving dinner and for Halloween, he even got to trek around with his niece and nephew for a while during their trick or treat time. He just got measured for new orthotics for his feet which will make standing a lot easier and more effective.
Funny, nothing we need, can we have, we have to beg and grovel for extended periods then maybe if we are lucky we will get the funds or portion of what is needed.
For this reason I will never forgive or forget ICBC and their walk away attitude nor the health system that wanted to walk away and wash their hands of our problem. They have the power to help to make this journey a little less painful if that’s possible, but they choose not to, they would rather have us drag it through the courts for several years so they can collect interest on the money that would change Chris’ quality of life for the better today I hope none of them are in this situation and have to deal with the same BS.
Here are a couple of links for you to check out pretty cool stuff.
http://www.cbc.ca/asithappens/episode/2010/11/03/wednesday-november-3-2010/
http://www.theglobeandmail.com/news/technology/science/vegetative-patients-may-be-aware-newly-recruited-researcher-says/article1779227/
Thank you all,
Kevin and Chris
