Well I am sitting in a muffler shop waiting for Chris's Van to be fixed before tomorrow morning so we can make it to Abbotsford for his physio session of walking strides and hand stimulation which takes place twice a week; this gets his legs stretched and circulation going as well.
Speech and swallowing is going great, our speech therapist has reached out beyond our own group, as well as the health authority to bring in GF Strong people to assist in technology and communications because Fraser health does not understand the very basics, of brain injury or how to treat it effectively. Chris's speech therapist also got the CAYA program involved and we have waited nine months or so to get in but finally met with them last week. It looks like they will help us with computer and software to help with communication and access switches. We should be getting that in the next week!!!!!
Our OT has been working hard to adjust and find the things we need but even
she is having a terrible time with the system as it gives her the run around and around.
It truly seems that the system uses therapists that are under an ongoing contact that keeps their costs down and in turn keeps the amount and quality of therapy down. They approve and spend foolishly without proper knowledge or without having properly trained people to over see, the most important part is quality of therapy, not just throwing money aimlessly hoping to make it go away.
Sorry to those of you who use this as an only means to checking in on how Chris is doing, but all of the changes in the system his court date is approaching rapidly and preparation is paramount. Therapy is still going very well Physio exceptional we do have the odd day and that is expected. Heather I am sure you would vouch for that, although Ponoka didn't have many off days.
We are waiting to hear from Chris dentist to get in for a cleaning and check up. Chris is still waiting for an eye exam which will have to wait until June. His 6 month check up with DR Reebye was great and very encouraging to hear that all the work we do is not in vain and shows extremely well with the condition and place Chris is in after all this time and struggle! Chris is still making great strides moving forward. All of this even though Fraser health has had us applying for equipment that they new we would not get.
Same old crap let you do all the work wasting time for something that is never going to be approved.
I guess most in the health care system just show up and collect a pay check the human side really plays nothing into decisions that are made.
At the present time Fraser Health will be planning on pulling all funding and support on April 26, 2011. This means an end to all therapy all health care workers helping Chris and they would like to see him sent to an extended care home with no therapy cut and dry ending what ever progress and hope Chris had!.
I still am in disbelief that ICBC and those responsible are still thumbing their noses and refusing to step up and be that pillar of the community they all talk about. Can you imagine having an accident on your way home one day and a month later being sent to a care home and throwing away the key, that is just how the system works unless you have an endless supply of money.
Just when did we stop caring and letting unelected and elected morons tell us what we were able to do or not to do, what we are not entitled to, how we are lucky to have what we have which is not very much!
We have been waiting ten months for a bed and mattress that would fit Chris properly, for a standing frame for physio, chair that he can sit in? Do you think the people who are responsible for providing these pieces of equipment and necessities care one iota, nada!
Fraser Health in all their wisdom by yanking us out of Ponoka before we were ready to go, have done a substandard job at providing the basics for health care and have kept us on edge guessing at what might be provided or approved or just ignored long enough so they can say it’s to late for them to help with those needs.
Speech and swallowing is going great, our speech therapist has reached out beyond our own group, as well as the health authority to bring in GF Strong people to assist in technology and communications because Fraser health does not understand the very basics, of brain injury or how to treat it effectively. Chris's speech therapist also got the CAYA program involved and we have waited nine months or so to get in but finally met with them last week. It looks like they will help us with computer and software to help with communication and access switches. We should be getting that in the next week!!!!!
Our OT has been working hard to adjust and find the things we need but even
she is having a terrible time with the system as it gives her the run around and around.
It truly seems that the system uses therapists that are under an ongoing contact that keeps their costs down and in turn keeps the amount and quality of therapy down. They approve and spend foolishly without proper knowledge or without having properly trained people to over see, the most important part is quality of therapy, not just throwing money aimlessly hoping to make it go away.
Sorry to those of you who use this as an only means to checking in on how Chris is doing, but all of the changes in the system his court date is approaching rapidly and preparation is paramount. Therapy is still going very well Physio exceptional we do have the odd day and that is expected. Heather I am sure you would vouch for that, although Ponoka didn't have many off days.
We are waiting to hear from Chris dentist to get in for a cleaning and check up. Chris is still waiting for an eye exam which will have to wait until June. His 6 month check up with DR Reebye was great and very encouraging to hear that all the work we do is not in vain and shows extremely well with the condition and place Chris is in after all this time and struggle! Chris is still making great strides moving forward. All of this even though Fraser health has had us applying for equipment that they new we would not get.
Same old crap let you do all the work wasting time for something that is never going to be approved.
I guess most in the health care system just show up and collect a pay check the human side really plays nothing into decisions that are made.
At the present time Fraser Health will be planning on pulling all funding and support on April 26, 2011. This means an end to all therapy all health care workers helping Chris and they would like to see him sent to an extended care home with no therapy cut and dry ending what ever progress and hope Chris had!.
I still am in disbelief that ICBC and those responsible are still thumbing their noses and refusing to step up and be that pillar of the community they all talk about. Can you imagine having an accident on your way home one day and a month later being sent to a care home and throwing away the key, that is just how the system works unless you have an endless supply of money.
Just when did we stop caring and letting unelected and elected morons tell us what we were able to do or not to do, what we are not entitled to, how we are lucky to have what we have which is not very much!
We have been waiting ten months for a bed and mattress that would fit Chris properly, for a standing frame for physio, chair that he can sit in? Do you think the people who are responsible for providing these pieces of equipment and necessities care one iota, nada!
Fraser Health in all their wisdom by yanking us out of Ponoka before we were ready to go, have done a substandard job at providing the basics for health care and have kept us on edge guessing at what might be provided or approved or just ignored long enough so they can say it’s to late for them to help with those needs.
Thank god we had the smart and experience people in Ponoka with years of professional training and a deep understand of brain injury and what it takes to evoke change.
To be continued!!!
Kevin
Kevin
