Hello again and on time,
It has been an eventful day, starting with Chris having his first seizure during the night although it was caught and recorded the reasons are still unclear but being looked into.
I will be taking Chris for a CT scan next week to rule out any problems and medication s are being reviewed to figure out what if any part they may have played.
As he was up most of the night and sleep deprived we opted out of the pool for a chance to gain more rest.
The rest of the day consisted some mild stretching and a couple long walks in the 26 degree temperature.
He will be watched very closely over the weekend and the plan will be to get him rested up and start fresh again on Monday.
We were hoping to be able to alter the house and make it satisfactory to meet Chris' needs.
This option is not going to be possible and therefore we must be prepared to move and alter a residence by the end of summer. This daunting task I had hoped would give more time but most of the trials we are doing here will be done by mid August if we are successful in obtaining all the rest of the approvals and hoop jumping that is required to stay the additional time. Hopefully it comes together as I feel it should.
If any one reading this blog has any suggestions as to fund-raisers or other means of raising funds Chris will be in need by the end of July as the ICBC funds can only be used for medical equipment and very specific alterations. Meaning we will have to cover most of the alterations and special needs ourselves. My pride has stopped me from posting anything to do with money or assistance. But we are left with no alternative as the government has a catch 22 scenario with the medical assistance, in that, as long as ICBC (a government controlled entity) has funds in Chris' name the Province will not grant him disability status enabling him to access funds for his basic needs (no money). Trouble is ICBC medical money will only be paid out for medical necessities as ICBC sees fit which are completely out of line with what Chris needs. All therapies and extras except for the water therapy at home have had to be paid personally.
I will be happy to follow up and explore any suggestions you have.
Thank you all for your time and concern,
Sincerely,
Kevin
2 comments:
Hi Kevin,
Its good you were in Ponoka, and not at home when Chris had the seizure, so that you could talk directly to the staff.
Will try to connect with you this week. Our love and hugs to Chris.
K
Looking back I hope Chris continues to make improvements with his mobility. It is so unfortunate and unexpected that Chris had a seizure...wonder whether it was medications or his brain making new connections. The government issues seem so frustrating I don't know how you navigate through it all and stay sane. As for money the pub fundraiser you did before was quite successful wasn't it? Maybe just make sure a really good band is booked too. Or maybe a silent auction but that take more effort to organize. Take care, thinking of Chris often.
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