Overdue update

Hello everyone,

It has been a fairly busy time in Ponoka, even though holidays and lack of therapy has been the order of the day over the summer. All the drugs that have been tested and tried have had a varying degree of success some not so well and others a glimmer of hope.

We are now in the process of trying the last of the drugs as our time winds down. There's not been an astonishing change but all the same Chris's physical and mental presents is very strongly felt and acknowledged every day.

It is our hope and plan that in the weeks and months to come the rehabilitation program that we have designed for Chris will prove to be very successful. During this time we will be looking for friends and family and others to help with the physical needs and therapies that will be a daily routine.

Our house hunting for suitable house and rehab Center has been very difficult, we have not found the perfect place nor have we been able to secure the proper help and financial support that really is necessary to move ahead successfully.

We are awaiting approval for home care support and hopefully within the next few weeks will be in a position to make an offer and secure the proper housing and facilities that will be required. Having said that, the places we have looked at will require some extensive renovations and alterations to accommodate the exercise equipment and all of Chris's needs. I would very much appreciate any and all support and help with this time comes.

The logistics of putting all this together has been quite trying, as the travel back and forth to Ponoka every week to spend those days with Chris during therapy have taken their toll and have not allowed for a lot of free time to look and plan for the immediate. Paperwork, research, medical articles and new technology, it takes an endless supply of time and consent ration to search for new research and medical therapies.

This week of August 4 we will be trying one more new drug and retrying one of the previous drugs, after that we are scheduled for a departure from the Centennial center the week of August 24, the immediate placement to where he will be is still in the air, as a lot of the government programs and funding are still being fumbled around and pushed from department to department. We do plan on finishing up the applications and having it presented by the end of this week.

On the positive side these past few weeks have been moving ahead with new things being noticed some of this has stemmed from the visiting of Christopher's niece and nephew they seem to be able to stir and cause sensations out of nowhere. We hope that having Chris back close to home near family and friends familiar voices and a structured rehabilitation program will build and build driving him forward to more successful steps. My time in the pool with Christopher has been unbelievable and Kylan has been coming into the pool with me and helping stretch and massage Christopher's feet and toes, Shelley and Uncle Larry also took turns in the pool helping out, I believe that Chris senses this very much, the aqua therapy without a doubt has been the most forward moving therapy to be done.

I have located a new piece of equipment that will allow Chris to exercise on a regular basis to increase his cardiovascular and circulation something that has been missing for all of these months. I anticipate some negativity in getting funding for this, so I have arranged for a machine to be delivered to the Centennial center so that Christopher may become familiar it and test it out with the doctors, physiotherapists and OT are present. Providing a hands-on proof that this machine will be of great benefit to him. Also providing the center the chance to try out a new piece of equipment.

How the machine responds and Chris responds to it will be posted once machine has been delivered and tried.

Christopher's uncle Larry has spent the past few weeks with me in Ponoka and weekends with Chris providing a much-needed change in conversation and stimulation thank you very much Larry. I know by way of phone calls and e-mails that many of you would like to be here if you could to encourage Chris. I look forward to seeing all of you and discussing Chris's therapies and how you may help out once we get back home.

Thank you all so much for checking caring and keeping in touch, I know I have breaks in updating the blog, sometimes, time just seems to go on and on then days turn into weeks. I will try to stay on top of this over the next few weeks. I may have to enlist a typist or someone that can that can type with more than two fingers.

Thank you for your patience,

Kevin