Thursday, November 26, 2009

Mid week Update

Hello and welcome,
We are nearing the end of November and are wrapped up in the process of extensions again. I apologize to those who check every day and found no update for a few days.
I have been trying to get all the paper work and pieces together for a month now so things would not be a confusion and endless rush to the deadline. But as usual the people that require all of this and those who can help don't unless pushed constantly.

Chris has been showing great signs after all the work and prodding by us and the new Physio therapist to take part in exercises that show his ability to hear and make decisions.
The things that most interest him are the questions and topics that are tied to his daily environment or memories of family and things that are dear and near to him including questions of medical nature and anatomy.
There have been the doubters and the odds against this happening were overwhelming so their disbelief is somewhat understandable. But in preparing the paper work that will be the foundation for his staying another term even those people have conceded that things do happen without reason or rhyme.
Chris is getting up to 85 % and higher on good days and is doing 50% consistently even on bad days and this is with the therapists and I changing positions so as not to influence his movements. On the good days his movements can be strong and direct others it takes some pushing to follow through.
Everyone has noticed true to Chris' nature that if something bores him or he loses interest, he will not take part until the exercise or activity changes.
I cannot begin to thank or praise the therapists that have taken to Chris and want to see a change as bad as I do. They really have been relentless and even when I get down or worn out they keep on going and pushing and coaxing for the answers. The support, caring and trust shown by the therapists, nurses, aides and the doctors has been unbelievable and is something you can never repay just be eternally grateful for all their help and understanding. I still can't believe that we can't build a facility even close to what they have here in Ponoka at home.

The sad part in all of this is there is a standard in testing for rehab that really applies to those who can move and take part in therapy as willing participants, and most medical facilities as well as heath authorities use this scale to test if someone should get more help, funding or consideration.
In the case of a severe injury slow and persistent should be the order of the day, but because all the little things that happen ever so slowly do not not count or matter, you do not measure up according to this scale and you don't qualify for additional help.
I see it as way to justify not spending the money even though we are talking about a quality of life not a sporting event.
I suppose that until these people have been brought down as low as you can go, and then experience the little things that happen miraculously on a daily basis as they build and struggle each and every day to gain back control or at least to meaningfully take part in a world they use to be a vibrant part of.
It is important to remind these people that all lives are precious and need every chance to work their way back into it no matter how little or how slow progress is.
It is these very people that will advocate saving a life at all cost because it is a measurable result.
But if that life cannot respond to take part in an testing situation they devise, then that life is deemed a failure and is expected to go quietly to an extended care home and stay until their final days, because they do not meet a standard that is not reasonable in all cases and does not have the ability to see past this.

Chris' Physio and I were going to try to video some of the things that are happening in todays session.
Then she called and informed me that the centers video person will come and tape as we work with him today. Once I have it and figure how to transfer it to this site I will post it.
Upon Leaving i will leave a link to the story that broke a couple of days ago that do show you should never give up when you know its there.
Thanks everyone I can only say "Thank You"
Kevin

The link is as follows:   http://www.cnn.com/2009/HEALTH/11/24/coma.man.belgium/index.html

No comments: