Sunday March 28, 2010

Hello everyone,

Chris has been making good progress through the week. Staying strong and eerily focused, sends a tingle up my back. I am still working hard at getting all the crap and red tape together to get him home in the near future. Really hope we can do this by summer and have all of it in place.

We are still waiting word or confirmation on the plan, which will bring Chris home to a place that will provide rehab and care equal to that of the Halvar Jonson Center, or an extension for the same at the Halvar Jonson Center. The Ministry of Health seems to be able to temporize very well and practises it to its utmost ability. The Health Minister himself has been very cozening in regards the accolades he receives in his dealing with issues that affect us all.

Looks as if the government and all the seemingly useless managers and directors of our medical system, do not feel he deserves a chance at life or that it is important that he be able to get home, the place he spent ten years away from gaining the knowledge he couldn’t get here so he could return and help this god-for-saken medical system.

Chris did not ask for this plight and those responsible for this happening as well as those who should be stepping up and helping at all costs (ICBC has been able to vitiate the insurance system just like the health ministry has to health care and our government to government services we all are entitled to), they seem to be able to walk away and not give it a second thought, funny these paper pushing puppets also are not able to complete a simple task at hand in a reasonable time frame.

When things get tough they hire a slimy lawyer from yesteryear to block all help? This still is grinding at me every day as they have nothing to gain by being so asinine, they gain some interest on money they owe, but at a cost of someone not having a chance at life.

Does this sound right to you, if not remember you bought insurance from these same people and you haven’t had the good fortune to deal with then yet.

To this day I have never received a request from any agency, government rep, or medical professional as to what our plans are for Chris and his rehab. The exception is the people and professionals at Halvar Jonson Center, they show this care and understanding on a daily basis, they share our worries daily and of course included in this group is the one doctor in BC, Dr. D, and the social worker who helped me with all the paper work to get Chris into HJC, they provided the aid and attention to the details when no one else would listen.

To these people I will be eternally grateful for the love, the understanding, the thoughtful gestures, the inspiring conversations and most of all the willingness to listen, thank you for the chances we have been given, although the fight is nowhere near ending they have been the vehicle and guidance to move forward. All of that combined with the never ending love and friendship I share with my son will drive me, to vivify not only his life but all those affected with brain injury and will continue to my last breath, with an inexorable attitude and determination.

The people I have met on this journey have inspired me and filled me with emotion.

Thinking on how fragile life is, and the unbearable, that is endured by not only Christopher and I, but by the families of the injured and the injured themselves as they struggle to make sense of all that has happened and hopefully never wonder if someone is carrying their hopes and their dreams forward as they try to heal.

The last thing anyone needs is more government interference and red tape if it is the one thing I accomplish through all of this, it will be to change the way the medical profession and health agencies and most of all, how our egregious Ministry of Health in its duplicity, refuses to acknowledge and deal with these victims in a caring and educated manner. Correcting this has become my job too, I refuse to look the other way, after delving into the fray of outdated and archaic health practises that are so top heavy with managers, of managers, of managers, of people who really do not have a clue what is going on around them.

Our society has accepted being lead down the path by doing what it is told by the so called professionals, we just didn’t know they are not as professional as we think at what they do, nor at how they do it. We the people need to make these so called professionals accountable for their decisions, actions and lack thereof as well as the outcomes that arise from such decisions.

Time has come to put a stop to it, to bring those who work with brain injury twenty steps into the future, by getting a more educated and open system that has health professionals with experience and not ego’s, as the job is, to heal and find solutions to the problem and not look over the shoulder as to who is finding it. The attention should always remain on the person and how to move forward with their care and solutions.

We so dearly need in British Columbia a Center similar in caring and understanding to that of which the Halvar Jonson Center emits and practises day in and day out. One that bridges the gap between acute care and the start of rehab, one that counsels and provides leadership in training families and friends as well as the health workers who would listen. Families are going to provide so much care in the future, care that the system cannot; it will remove a colossal burden on our already taxed system.
The government should be joining in with guns ablazing to provide help and get on board with educating families and professionals, as this initial investment in training and being human will pay dividends in the not too distant future, as well, it will give families and friends a purpose and ease of mind in the caring of those injured and in need of constant care.

Understanding this is not difficult it can be done by a ten year old; I know this for a fact, so why is it so hard to get the government and highly trained professionals on board and seeing past the end of their nose or elected life.



We have started a Society to look into research, programs and aid in helping those with Brain injury.



The Society is: Dr. Christopher Adam Bigelow Society for Brain Injury


We will be accepting donations to the society with the goal of opening a counselling and rehab center for those who cannot get help through regular channels.

Its main goal is education and training for those with Brain Injury and their family and friends.

Cheques should be made out to: Dr. Christopher Adam Bigelow Society for Brain Injury

Till next entry,

Kevin