New week new start

Hey all,


We are back at it, a trying weekend letting everything sink in making sure all of Chris’ needs are being met before taking aim at the short fall. Chris had a pretty good weekend and end of the week last week. What is not going great is the therapy, the therapy that was to start the day after arriving home, it was to be seamless so as not to upset Chris’ schedule he was use to and responding to.

Connect’s staff are trying to get it in order, all the time learning, listening and watching while I show and explain how things worked at HJC and why it was so successful. Showing why a caring private facility can always be a viable alternative to our dysfunctional system. They are very good at listening and addressing concerns no problem trusting Chris' daily care with them, they are a good bunch and I look forward to working more with them.

I will start this week by trying to bring in more therapists as there has been nothing after ten days, this is a direct result of the limitations and restrictions that Fraser Health and the Ministry of Health have put in place, they do not and will not recognize the work and detail that HJC has put together over the last fourteen months of long hard work. HJC provided detailed and extensive directions with full reports and descriptions of what has to be done. They have been available at all times at the other end of a phone to provide direct direction to any that would need it. Hard to believe that one of the most advanced centers for brain injury therapy would not be listened to, even after our Minister of health Kevin Falcon said they would follow the direction of Chris’ doctors in Alberta and BC. To this date none of it has been followed or adhered to.

Withholding access to funds, our health system is depriving Chris of a chance to recover to his best ability. We have spent around 400,000.00 dollars in the last year and a bit to get to this point not to mention the sweat and lost lives, torn dreams, the endless fighting of the system, mostly over things they are unable to comprehend or are capable of understanding.

In the middle of making great strides in Alberta at HJC, without notice, without reason or explanation it has been removed almost instantly. I will be meeting with Chris’ legal team to discuss our options but already have a feeling it will be left to me again to push the envelope to make changes happen.

I am taking Chris to the pool right now and will continue this afternoon.

Kevin