Hello,
Just a quick update, things are going really good. Chris is finding more and more ways to let us know what's bugging him.
The Therapists have been fantastic looking for more tools and ways for communication; we have applied for some programs that will help with the cost. Fraser Health is seemingly on board with the way things are going, time will tell. I would rather find what we need without the hassle but what ever it takes!
Still looking for a house to fit us getting pretty close, would be so much easier if ICBC stepped up as promised to help with the housing issue, but they have more important things to do with our money, like keeping the managers well paid and fed.
Can't find a case like it, where they would advance some of the claim to help out with housing and therapy. It is an on going issue I will fill in more in the next couple of days.
Also post when new things are happening!!
Thank you all,
Kevin
Friday, July 23, 2010
Tuesday, July 13, 2010
Good evening can't sleep
Good Evening,
I thought about all the crap that has been brought forward to block Chris’ progress and have to ask why?
Is it because the people that perpetuate this are ignorant to the fact that rehab works?
It has been shown over and over that continual rehab from an early start is most productive, and yet it is seldom started when it should be if at all.
If it were not for all the contacts through doctors that Chris worked with and for I would not have known either.
Fraser Health and the Ministry of Health never offered and in fact turned us down to be a part of their program, most of the doctors involved were of the belief that you don’t touch or move anyone after a brain injury.
Use to think it really was the way they thought but soon realized that it was just plain ignorance. Those who fight and persevere through the gamut of obstacles set in place by the Health authority seem to get some token of help, but it always is being pulled back. It is as if when you make progress a red flag goes up that says this could cost us more so lets stop it. I wonder really wonder how these people who work for Fraser Health go home at night and love and be loved.
I only hope their children never experience the devastation Chris and all of us have had to endure, through the injury and tremendous losses. We still fight the archaic system every step of the way. If any of these people’s children experienced a tragedy like we have, would they fight or give up and swallow all the crap they have forced down others throats.
Their work requires them to be sneaky, dishonest, story tellers and at all costs cut back any and all therapy the bottom line here is dollars and we have all seen what our government, Health system, Health region find important and it is not people. Nor is it caring whether someone heals and moves forward it all comes down to how many dollars are saved or not spent.
I will attend the meeting Wednesday morning even with reports missing and two of the three administrators missing with nothing of importance to discuss we will have them pay an extremely large amount of money to sit and rehash the bull around and around, I think when they have meetings it makes them feel justified in get ridiculous high pay for really providing nothing of value. If some of these people in Fraser Health had to work in the private domain they would be out of a job. Interesting enough that the cost of administrators and bureaucracy in the Fraser Health region alone amounts to around 9 billion dollars a year. If we cut that in half and gave it to those who supply rehab we would have a healthy change to injured people in this region.
Lots more to add and enlighten but it will have to wait.
Good night will fill in the missing pieces tomorrow.
Kevin
I thought about all the crap that has been brought forward to block Chris’ progress and have to ask why?
Is it because the people that perpetuate this are ignorant to the fact that rehab works?
It has been shown over and over that continual rehab from an early start is most productive, and yet it is seldom started when it should be if at all.
If it were not for all the contacts through doctors that Chris worked with and for I would not have known either.
Fraser Health and the Ministry of Health never offered and in fact turned us down to be a part of their program, most of the doctors involved were of the belief that you don’t touch or move anyone after a brain injury.
Use to think it really was the way they thought but soon realized that it was just plain ignorance. Those who fight and persevere through the gamut of obstacles set in place by the Health authority seem to get some token of help, but it always is being pulled back. It is as if when you make progress a red flag goes up that says this could cost us more so lets stop it. I wonder really wonder how these people who work for Fraser Health go home at night and love and be loved.
I only hope their children never experience the devastation Chris and all of us have had to endure, through the injury and tremendous losses. We still fight the archaic system every step of the way. If any of these people’s children experienced a tragedy like we have, would they fight or give up and swallow all the crap they have forced down others throats.
Their work requires them to be sneaky, dishonest, story tellers and at all costs cut back any and all therapy the bottom line here is dollars and we have all seen what our government, Health system, Health region find important and it is not people. Nor is it caring whether someone heals and moves forward it all comes down to how many dollars are saved or not spent.
I will attend the meeting Wednesday morning even with reports missing and two of the three administrators missing with nothing of importance to discuss we will have them pay an extremely large amount of money to sit and rehash the bull around and around, I think when they have meetings it makes them feel justified in get ridiculous high pay for really providing nothing of value. If some of these people in Fraser Health had to work in the private domain they would be out of a job. Interesting enough that the cost of administrators and bureaucracy in the Fraser Health region alone amounts to around 9 billion dollars a year. If we cut that in half and gave it to those who supply rehab we would have a healthy change to injured people in this region.
Lots more to add and enlighten but it will have to wait.
Good night will fill in the missing pieces tomorrow.
Kevin
Moving Forward Against All Odds
Good morning,
It has been over a month since any updates have been done to the blog, mainly because I've been very busy, Chris's therapies and running great and expanding
The therapies that Chris is taking part in have been absolutely fantastic his physio is ramping up and working in cooperation with the speech therapy. Occupational Therapy is working with both other disciplines to find the equipment and other environmental controls that will assist.
The amount of energy Chris puts out trying to communicate is unbelievable I am in awe at his strength and determination. Chris knows he has to struggle to communicate to let us know the things that he needs.
He is now answering questions putting sentences together, picking out pictures.
We just have to find an easier way for him to communicate all of these feelings to us.
Our daily job is to strengthen the areas that he needs to use so as to promote communication; I feel we are well on the way to doing this.
It will be a couple days before the next update, tomorrow Wednesday morning we will meet with Fraser health and the therapists that are treating Chris.
Until now Fraser health remained running in the background I'm sure looking for ways to cut back or to weasel their way out of all of the things that were promised.
I have never seen an organization run the way this one does, it seems to be run by people who have no training or background in rehabilitation or successful medical research in the field in which they are employed.
When given information by highly trained professionals, doctors and by the therapists highly trained in this area of injury they still want to look the other way and pretend they know best.
It's about time that some of the research on training or lack of, be made public for all to read, you would then understand why people in these situations in need of therapy but not able to get it, can not move forward and have very little hope of ever doing so!
Basically our health system would have a social worker or their appointee decides who and what you will get for therapy if any at all. It is sad that these decisions are made by someone with less or no training in the discipline in question and have the ability to toss aside the trained professionals report and recommendations’ and come up with their own personal decision based on what?
That being said, would then lead one to believe that a social worker could then double as a neuro-physiotherapist saving the system a whole whack of money. But wait a minute; why should they do it when they actually think that a care aid or rehab assistant can take the place of a fully licensed physio therapist with neuro training.
My goodness does the physio therapist association know this, if this is true why would anyone want to put in the years of training to specialize in this field for which there is an unrelenting need, when in fact anyone can do it. I have been hands on with this for almost three years now, I have seen it all, but the wasted money for all the multiple layers of bureaucracy to over see highly trained professionals is most daunting and the biggest waste of medical and rehab dollars in a system that is dysfunctional and a waste of tax payers dollars.
We will wait and listen; we will be patient but only as long as it is in Chris's best interest.
It's so very true, information is a powerful thing in the wrong hands it could be devastating,
yet in the right hands it can evoke change for thousands.
We need to keep researching and keep promoting, knowing that brain injury is still in its infancy for rehab. It is definitely about time that trained professionals as well as those in administrative positions in this field get up-to-date and not 20 years behind the time even more so if they are involved in making policy and overseeing programs of this magnitude.
At the end of the day Chris is doing great the therapists are doing a wonderful first-class job and at Connect the place Chris resides for the time being, are great listeners and caregivers we appreciate the care and dedication provided by these people. I hope that they're doing a good job does not affect the support the ongoing care at Fraser health and the ministry of health are going to provide.
Thank you all for your patience and your ongoing support we will in the near future be putting together another news story that will engulf allot of these issues and start to show the positive things that can happen in brain injury rehab.
Bye for now and thank you,
Kevin & Chris
It has been over a month since any updates have been done to the blog, mainly because I've been very busy, Chris's therapies and running great and expanding
The therapies that Chris is taking part in have been absolutely fantastic his physio is ramping up and working in cooperation with the speech therapy. Occupational Therapy is working with both other disciplines to find the equipment and other environmental controls that will assist.
The amount of energy Chris puts out trying to communicate is unbelievable I am in awe at his strength and determination. Chris knows he has to struggle to communicate to let us know the things that he needs.
He is now answering questions putting sentences together, picking out pictures.
We just have to find an easier way for him to communicate all of these feelings to us.
Our daily job is to strengthen the areas that he needs to use so as to promote communication; I feel we are well on the way to doing this.
It will be a couple days before the next update, tomorrow Wednesday morning we will meet with Fraser health and the therapists that are treating Chris.
Until now Fraser health remained running in the background I'm sure looking for ways to cut back or to weasel their way out of all of the things that were promised.
I have never seen an organization run the way this one does, it seems to be run by people who have no training or background in rehabilitation or successful medical research in the field in which they are employed.
When given information by highly trained professionals, doctors and by the therapists highly trained in this area of injury they still want to look the other way and pretend they know best.
It's about time that some of the research on training or lack of, be made public for all to read, you would then understand why people in these situations in need of therapy but not able to get it, can not move forward and have very little hope of ever doing so!
Basically our health system would have a social worker or their appointee decides who and what you will get for therapy if any at all. It is sad that these decisions are made by someone with less or no training in the discipline in question and have the ability to toss aside the trained professionals report and recommendations’ and come up with their own personal decision based on what?
That being said, would then lead one to believe that a social worker could then double as a neuro-physiotherapist saving the system a whole whack of money. But wait a minute; why should they do it when they actually think that a care aid or rehab assistant can take the place of a fully licensed physio therapist with neuro training.
My goodness does the physio therapist association know this, if this is true why would anyone want to put in the years of training to specialize in this field for which there is an unrelenting need, when in fact anyone can do it. I have been hands on with this for almost three years now, I have seen it all, but the wasted money for all the multiple layers of bureaucracy to over see highly trained professionals is most daunting and the biggest waste of medical and rehab dollars in a system that is dysfunctional and a waste of tax payers dollars.
We will wait and listen; we will be patient but only as long as it is in Chris's best interest.
It's so very true, information is a powerful thing in the wrong hands it could be devastating,
yet in the right hands it can evoke change for thousands.
We need to keep researching and keep promoting, knowing that brain injury is still in its infancy for rehab. It is definitely about time that trained professionals as well as those in administrative positions in this field get up-to-date and not 20 years behind the time even more so if they are involved in making policy and overseeing programs of this magnitude.
At the end of the day Chris is doing great the therapists are doing a wonderful first-class job and at Connect the place Chris resides for the time being, are great listeners and caregivers we appreciate the care and dedication provided by these people. I hope that they're doing a good job does not affect the support the ongoing care at Fraser health and the ministry of health are going to provide.
Thank you all for your patience and your ongoing support we will in the near future be putting together another news story that will engulf allot of these issues and start to show the positive things that can happen in brain injury rehab.
Bye for now and thank you,
Kevin & Chris
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