Good morning,
It has been over a month since any updates have been done to the blog, mainly because I've been very busy, Chris's therapies and running great and expanding
The therapies that Chris is taking part in have been absolutely fantastic his physio is ramping up and working in cooperation with the speech therapy. Occupational Therapy is working with both other disciplines to find the equipment and other environmental controls that will assist.
The amount of energy Chris puts out trying to communicate is unbelievable I am in awe at his strength and determination. Chris knows he has to struggle to communicate to let us know the things that he needs.
He is now answering questions putting sentences together, picking out pictures.
We just have to find an easier way for him to communicate all of these feelings to us.
Our daily job is to strengthen the areas that he needs to use so as to promote communication; I feel we are well on the way to doing this.
It will be a couple days before the next update, tomorrow Wednesday morning we will meet with Fraser health and the therapists that are treating Chris.
Until now Fraser health remained running in the background I'm sure looking for ways to cut back or to weasel their way out of all of the things that were promised.
I have never seen an organization run the way this one does, it seems to be run by people who have no training or background in rehabilitation or successful medical research in the field in which they are employed.
When given information by highly trained professionals, doctors and by the therapists highly trained in this area of injury they still want to look the other way and pretend they know best.
It's about time that some of the research on training or lack of, be made public for all to read, you would then understand why people in these situations in need of therapy but not able to get it, can not move forward and have very little hope of ever doing so!
Basically our health system would have a social worker or their appointee decides who and what you will get for therapy if any at all. It is sad that these decisions are made by someone with less or no training in the discipline in question and have the ability to toss aside the trained professionals report and recommendations’ and come up with their own personal decision based on what?
That being said, would then lead one to believe that a social worker could then double as a neuro-physiotherapist saving the system a whole whack of money. But wait a minute; why should they do it when they actually think that a care aid or rehab assistant can take the place of a fully licensed physio therapist with neuro training.
My goodness does the physio therapist association know this, if this is true why would anyone want to put in the years of training to specialize in this field for which there is an unrelenting need, when in fact anyone can do it. I have been hands on with this for almost three years now, I have seen it all, but the wasted money for all the multiple layers of bureaucracy to over see highly trained professionals is most daunting and the biggest waste of medical and rehab dollars in a system that is dysfunctional and a waste of tax payers dollars.
We will wait and listen; we will be patient but only as long as it is in Chris's best interest.
It's so very true, information is a powerful thing in the wrong hands it could be devastating,
yet in the right hands it can evoke change for thousands.
We need to keep researching and keep promoting, knowing that brain injury is still in its infancy for rehab. It is definitely about time that trained professionals as well as those in administrative positions in this field get up-to-date and not 20 years behind the time even more so if they are involved in making policy and overseeing programs of this magnitude.
At the end of the day Chris is doing great the therapists are doing a wonderful first-class job and at Connect the place Chris resides for the time being, are great listeners and caregivers we appreciate the care and dedication provided by these people. I hope that they're doing a good job does not affect the support the ongoing care at Fraser health and the ministry of health are going to provide.
Thank you all for your patience and your ongoing support we will in the near future be putting together another news story that will engulf allot of these issues and start to show the positive things that can happen in brain injury rehab.
Bye for now and thank you,
Kevin & Chris
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