Hello,
Back on track with all most everything, it still is a daily struggle, but we move forward each day. Chris will be trying out a new. Walking machine on Wednesday hooray! If it goes well we will be doing it every week in conjunction with other therapy. Speech and communication is very time consuming and tedious but on the days Chris is up to it, it is the most amazing thing you have ever seen. W ho would have thought such a simple thing would bring tears to you eyes every time. It is moments like this that let me know he is so frustrated and wants to speak so badly........unbelievable amount of work but very minute is worth it.
We will have Fraser Health on board until the end of July but for care costs only so we will remain being responsible for the therapy costs on a daily basis.
Therapy has been going great since Fraser Health pulled out at the end ofApril leaving us with nothing, I am sure the therapist or more at ease and can do what they were trained to do, with out someone watching over their shoulders every second and constantly trying to get them to reduce therapy time. Independent therapy and therapists are the only way to go, a world of difference.
We did Have CSIL support to help pay some of the care costs but Fraser Health decided we were not spending it the way they wanted us to. (seems the purpose was for CSIL was for us to do what made best sense for us, without their control) Guess as long as they are involved they will make it as hard as possible to live life the way we see fit.
If we could only put more accountability into their decisions, better yet get someone who can think and pay attention longer than five minutes.
Till next time with more to add,
Kevin
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