Hi everyone,
We were back in the pool today, which was a good thing as Chris was quite uptight and irritated for most of the morning. We stayed in for an hour and a half, it took the first hour just to get him to let go and relax, but it paid off later with some pretty sound sleep.
Then I found out his drugs had been accelerated and increased over the last two days, lots of weird changes some good some not.
Starting to question some of the things being done and not followed up the way I would like to see them done.
I am beginning to feel like a squeaky wheel that they would rather change than oil?
Found out our time here is being questioned everyday. Kind of like waiting to get fired from your job with nowhere to go. Sure is an uneasy and very uncomfortable day to day existence knowing time is winding down.
We are now waiting to see the outcome of the drugs that have been increased and sped up because of our time restriction here.
There is still a glimmer of hope for a partial extension, but it will take some negotiating and convincing of things that are yet to be tried.
Nothing makes you learn and research like necessity, and there is no shortage of that.
In fact without me having that intimate knowledge about the line of drugs commonly used or in fact not commonly used in treating the brain, makes you feel like your cramming for an exam.
If you don't understand what you are asking for or understand why things work the way they do nobody has the time to tell you as it is new to most of them as well. Remember most of the new research is done in the U.S.
We will be in the water tomorrow and hopefully he can relax as well as today, the water is a great release even if just to relax and let go of tension. Chris' aunt will be visiting him Friday and through the weekend, a change for him and break for me.(thank you Helen)
Stay tuned will keep you informed as things unfold.
Kevin
2 comments:
Fingers are tightly crossed for Chris to stay as long as possible at Ponoka! He deserves the best possible opportunity for getting the most up to date rehab strategies.
Thinking of you all always!
Love and Hugs to Chris,
K, J and Family
I am back from a great weekend with Christopher. The weather was great and we spent some time in the sun reading....We finished our book "My Stroke of Insight" by Jill Bolte-Taylor - thank you Bobby for getting it for me to read to Chris. He seemed to enjoy it very much, especially the medical parts...he didn't wince too much when I had trouble with pronunciations...sorry Christopher.
I was able to accompany him to his current events and he was in true Bigelow form and fell asleep after the first couple of segments of news...they had some medical segments but they were at the end so I think they were lost in his snoring.
I passed on everyone's good wishes and love and he reacted as I said names and told him everyone was thinking of him. It is so nice to see that he is getting therapy and workouts that are benefiting him. I sure hope he has the opportunity to receive more treatments...
Anyway, thank you Kevin & Shelley for giving me the opportunity to spend a weekend with him. Kevin I do not know how you do it...I stayed in Ponoka and was drained after a day at the clinic...I took only a couple hours out to go and get a bite when he was resting but my hat goes off to you with all you do when you go there...Everyone at the clinic sings your praises and are impressed with the time and effort you take to make sure everything happens for Christopher.
By the way, Larry, the red headed nurse, with the big smile, said to say hi and she misses you visiting...
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