Wednesday, May 13, 2009

WEDNESDAY MAY 13, 2009

Hello,
Some trying days, lots of discussions about upcoming funding by BC for Chris to be able to stay another 90 days and if we will get it.
Alberta Government is thinking of canceling the out of province beds, but we have not heard anything about this yet just crossing our fingers and planning for positive outcome.
It really takes away from all the positive stuff going on and cant help but have a lingering feeling hanging in your head all day. We have the doctors support and we are trying to get in all the different trails we can in the short time left just in case.
The Docs have tried to be positive and they too have not written anything in stone. It may come down to the incoming doctor Dr. R to write and convince an already backward system in BC to allow another 3 months to really try what we came here for.
Seeing as how we have nothing even remotely close to this at home.

Anyway on to the positive, we started a new drug on Wednesday it will be a couple of days to see any results the first day was pretty tiring and laid back.

Our pool times have increased to Monday, Wednesday and Thursday and today I was able to convince them to open up a Tuesday session in the morning.

Mondays and Tuesdays I will have to take Chris in by myself and Wednesday and Thursday the Rec Therapist will assist with the time in the water. Kinda sucks with all these victories in the access to the water, is that if I am not here he won't get in at all. Just appreciate the ability to use it and make the most of it!
We are in the water first thing in the morning and several therapies will be going tomorrow. With the long weekend though we will not be able to use the pool again until Wednesday, but Shelley and the kids will be here with him over the weekend and into the start of next week so that will keep his moral up.

2 comments:

Kathleen said...

Hang in Kevin...things have worked out so far. I have faith that things will happen in Chris' favour.
Not sure if you are home right now or not, but Trevor Greene is in the paper again. He just made his first public speech! I will keep it in case you are interested in reading the article.
Thats great that Shelley and the little ones will visit this weekend! All that family support has got to make a huge difference in how the days feel to Chris.
We are thinking of him throughout every day and sending him our love and hugs.
K, J, and Family

Rick Honey said...

Good afternoon Kevin and Chris,

I sure hope that you are able to convince the authorizing authorities to convince B.C. to allow Kevin to stay for another 90 days. It would be a shame for it all to end now just when you are seeing real improvement and progress. Be vigilant and steadfast Kevin. Your enthusiasm and positive nature will take you a long way.

Bye for now.

Rick